A Cry Guide: For Your Pleasure

So you need a cry party?

A true crier needs no audience. Ladies, remember, cry for yourself and nobody else. If you don’t cry for yourself, who will?

Find the perfect time when you can be alone. Purposely leave your tissues far away to add the lovely element of dragging your limp, heaving body to them.

Pretty tissues are advised

Pretty tissues are advised

As you feel the tears start, encourage them to keep coming. The more the merrier. When the moment feels right, begin keening sounds. With every breath hike the volume until reaching desired level. The aim is to achieve a point where you’re screaming out your pain and the tears are nothing but a sidekick.

All done? If you left tears behind, tidy them up with a tissue. Discretion is advised. No one can take away the special moments if they don’t know about them.

Did that cry make you feel better? I know I feel better.

Until we cry again,

Ella

Song Quote:

It’s all right to cry, even my dad does sometimes. So don’t wipe your eyes, tears remind you you’re alive. –Even My Dad Does Sometimes, Ed Sheeran

This

I have words with which to describe beauty. I have words with which to chronicle elation, and words that express pain. I have many words with which to describe frustration, happiness, fatigue, excitement or nervousness.

Why don’t I have words for this?

I’ve gotten better at hiding my feelings lately. If I’m fed up with myself for being in this mood for so long, other people must be fed up with it too. I don’t want anyone to get fed up with me. It’s just this combination of feeling so sick, and having already used up my store of emotional strength and inspiration. There are days when I just don’t want to get out of bed anymore. What’s the point, really? If I know that I’m going to be suffering all day? I’m just a hollow statue of a human, running on empty.

See, I have words to describe that. But it’s not this. I don’t even know what this is. I don’t even make any sense any more. Where are my words? Why are they hiding? They’re in my head, I know they are, I can feel them. I think that maybe they’re going underground because they know that if I express this out loud, I can never take it back again. If I let my soul, my heart, my mind, whatever, figure out the words and write them down, they’ll never forget them. The thing with feelings is that they change, and you forget exactly what they feel like. We remember feelings as words. We allocate this feeling to anger, that one to exhilaration and another to sorrow. The words are what we visit later on, not the feelings themselves. At least most of the time.

Now that I think about it, I understand why I can’t word this. My body is protecting itself, for once. Maybe it’s better this way. Maybe, when it passes, I’ll be able to move on and forget that I ever felt as lousy as this. Wouldn’t that be nice?

I just wish it would pass already, because I’m so tired of feeling this way. I feel like a broken record, because I keep writing again and again about being fed up with being sick. I also feel like a broken record because I just feel kind of broken. But what can I do? I can’t will myself into health, I’ve tried that before. I keep up whatever I’m told to do, as much as it sucks. Yet I still feel this way, and it’s still what comes pouring out when I sit down with a crisp white piece of paper and a black pen (hands up all of you that didn’t think about me writing on actual paper before posting).

There have been a few escapes. When I’m with my friends I’m less aware of the pain, and I was with my friends all weekend. When I’m watching TV I’m fairly distracted. When something around me is pretty. And… no, that’s about it. Often it just feels like I’m going to explode.

I’m lost for words again.

Yours truly,

Ella

 

Song Quote:

Life goes on the same, you bury the pain… heal the song, sing along, but what does it change? Oh this life is s confusing, feels like I am always losing… Words are found too close to the edge, that we don’t dare sing. –Somewhere Else, Travis

 

I pass this on my way home from school, and I get to escape for a little while

I pass this on my way home from school, and I get to escape for a little while

 

P.s. Sorry for being absent for a while. This has clearly been getting in the way. I was thinking of adding another page- any idea what it should be? Let me know in the comments or contact me.

The Strike

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I would say the past couple weeks have been like a roller-coaster, but I’ve never been on one, so I don’t think I have that right. What have I been on? Trains. Busses. Planes. Pain meds. Herbal extracts. Okay: the past couple weeks have been like travelling in a bus that’s on pain meds, and therefore can’t figure out if it’s actually a plane or a train. Stir in herbal extracts.

Last week I wrote (and didn’t post): “I feel so pathetic. I’m so tired. I don’t even know how I made it through the day. I just don’t know what the point is anymore. I fight and I fight, I write inspiring words on my blog and tell people that I’m okay, it’s hard but I’m okay, but I am not okay. It’s all futile, all the hard work and the torturous treatments, they aren’t working, they aren’t fixing me, I’m still like this…. It all just seems impossible. It feels like I’m being punished, and yet held up on a pedestal by my teachers who admire how I handle it all. I don’t want it anymore. But what always happens is going to happen again – I’ll feel like this, I’ll go to sleep, I’ll wake up, I’ll start getting ready and then I’ll just go through the motions of life and time will pass and before you know it I will have ‘made it through the day’ and be ‘coping’ again. It’s inevitable.

I…

I…

I’m… just so               

Tired. Of all of it. I can’t hold back the tears any longer. How am I going to make it through? Is this all that life is, just awful things and ‘coping’? Is this what the rest of my days will look like? Cause today was bad.

I feel helpless, and hopeless.

E.”

From the strength going on in my last post, I went into a tsunami of fatigue. It lasted a while. I spent the whole next day just staring, because I was too tired to even read. I only smiled once — smiling isn’t energy conserving. The next day I had a test, and the only thoughts I had the whole time were, “Yeah, I know the answer to that. Oh, I have to write it down? I need to move my hand? Do I really? What will happen if I don’t? I don’t think I can. I’m so tired.”

There was also an annoying question on the test that required some calculations (it wasn’t a math test) and I knew that with the brain fog happening I would mess the calculations up and lose the points for the question, so I politely raised my hand.

Me: I know it’s pathetic and sad, but I need a calculator to answer this question.

Teacher: Really? Ella, you really need a calculator? You’re serious?

Me: Yeah, I really do. I honestly don’t know what a million divided by five is right now.

Teacher: Really? Really? You don’t know how to do that? Are you joking?

Me: No, I’m not joking. Can I use a calculator or not?!

Teacher: Okay, I’ll tell you. What do you want to do?

Me: A million divided by five.

Teacher: Ella, it’s 200,000.

It’s a good thing I asked, because I thought it was 250,000. When I’m that sick, I can’t think! I was not happy with my teacher for the way he responded, loudly, in front of the whole class, making a big deal over the fact that I couldn’t do simple math. He’s not a mean guy and he really didn’t mean to be mean. He generally means well and he’s been very kind to me, but sometimes he’s clueless.

If I tell you about every day, this post will never end. I can endlessly find more words to describe my pain and my suffering. In short, I had days that were up and days that were down (like the day that lead to the italics). I had moments of great depression and moments of elevation. Well, maybe elevation is a little extreme; moments of feeling slightly hopeful. Another test this week was messed up because of fibro fog. It’s so frustrating; it’s not that I don’t know the material, it’s that I can’t get it out of my brain.

My right foot has gone off its rockers. I was talking to a friend who lives on the other side of the world and suddenly my toe just dislocated itself. It felt like the toe next to my big one (does it have a name?) just snapped downwards and underneath the one on its right, and I couldn’t get it to move back. My whole foot kind of seized up and I just looked through the camera at my friend and said “I have to go call my mom now”. I wrote to her later and explained it all. I have no idea what it was, just some weird cramp, but it was extremely painful and scary. It went back into place after I laid it on a heating pack, and I know that it didn’t actually dislocate itself, but it felt like it did.

Then a few days ago, when I was having an up day, I had a couple friends over for a movie, and when I bent down to press play it happened again, exactly the same way: suddenly, without me having done anything, my toe just pops out of place and gets locked in a different position. I must say, I’m very proud of the way I handle sudden pain. I am the picture of serenity. Ish. Anyway, it went kind of like, “Hey, do you think you could reach above the fridge? There’s a purple pillow there. Yeah, could you just stick that in the microwave and hit start? Oh, thanks! What? Oh, nothing. My toe just feels weird. Yeah, I’m fine on the floor. Oh, thanks, that’s really sweet, but I honestly don’t think it would go well if the two of you tried to lift me and swing me on the couch. I’m good, I’ll sit here for a few minutes.”

Other than that the night was great. Unfortunately I still feel it spazzing out. My whole foot has been cramping ever since and my toe still feels dislocated. There seems to be no end to the weird sensations that plague my body daily. Sheesh, I sound like I’m 80.

I’m tired. I’m scared I’m going to run out of fuel at some point. I have a few high-pressure weeks ahead of me, but I need to work a lot on calming down, seeing as that is probably the cause of the foot fiasco, as I have taken to calling since half-a-second ago.

Yours,

Ella

Song Quote:

I think I’m being shunned by my feet… again. –Homeless, Ed Sheeran

Okay, I’ll admit, I have been waiting a long time to use that quote. Glad it works so well here!

 

P.S. I would love it if you would leave a comment with your favorite quote. It can be from a song, something you saw online, a well-known person’s fancy sentence, a life motto, anything that comes to mind when you see this, really. If you know where the quote is from/ who said it, please include that too. Thank you in advance!

 

Okay, What Now?

 

 

Stick Figures

 

I want to reach out my hand and participate, but before my hand can move a fog wafts before my brain and all optional activity halts. I stop thinking, stop moving, and stop feeling. Then, surprise surprise, I feel disconnected. For the past two weeks, it has just felt like I’m going through the motions but I’m not really there. Though feeling disconnected can happen to anyone, this feels like fibro fog. I hate it.

The only times when I’ve felt present in these couple of weeks has been while driving. I’ve had four driving lessons so far, and I love it. When I’m driving, I have to be present, and nothing else exists in my brain except the steering wheel, the pedals, the driving teacher and the road. And other cars and pedestrians, I guess. But it’s like there is nothing wrong with life, nothing sad or hard going on, no headache even, because I am completely focused on being alert and aware of my surroundings and in control of where I’m headed. It’s a welcome change, being so wholly focused on one thing that I can’t feel pain.

Sometimes I just don’t know what to do with myself. Lately I end up in these situations where I get to a certain point and I go blank; what now? Like talking to a group of people, for example: we’re talking, getting along, I feel happy to be with people, and then suddenly I just feel my brain being wiped clear and I’m vacant inside. I’m looking at the people around me, at my friends, and I just don’t know what I’m supposed to do next. Do I say something? Should I get up? Should I stuff food into my mouth? I usually do the latter, but it has become increasingly hard seeing as I’ve been put on a gluten-free, dairy-free, processed-free diet for medical reasons. You don’t really get to have comfort food when you’re on a fun-free diet.

I told my friend about this void that appears within me, and about how unmotivated I seem to be (notice the missing post that should have shown up a week ago but that I never wrote), and she told me that she understands and maybe I need to give myself a break. So I did. Well, sort of. I did whatever homework was for the following day, but didn’t plan ahead and do the opposite of procrastination (which is what I usually do because I seem to have been born that way). It helped a little, mainly with feeling guilty about not getting things done; when you decided not to do it, it’s less bad than just not having the inclination to do it. That said, the feeling still showed up today, and I feel it looking back on everything that has gone on. I still feel detached.

I’ve decided it’s just a defense mechanism, and it will go away. I’m sure everyone gets this way sometimes. We wouldn’t be human if we didn’t have a wide range of emotions, and feeling disconnected is somewhere on that range. This is life: I embrace it. There are going to be ups and downs. Like hills. Which I have mastered. Ooh I have a good metaphor similie thing!!! I know when to press the gas, and when to use the breaks- I know how to take care of myself. Ah get it?! Oh my, I am so so proud right now. Just saying.

Also, Tim over on tcopelandfilm/storiesnotworthreading wrote something that was inspired by my blog. I suggest reading our discussion at the bottom of the page because it actually made way more sense to me after he replied to my comment and explained where he was going with it. Thank you, Tim, it meant a lot to see that what I’ve been writing has been able to inspire someone else.                                                http://storiesnotworthreading.wordpress.com/2013/12/27/hinged-lives/

 

Yours truly,

Ella

Song Quote:

I took a walk on a Saturday night, fog in the air, just to make my mind seem clear. –My Fault, Imagine Dragons

P.s. It’s been forever since I sat down to write something. This feels good. Anyone else notice that I’m getting frighteningly close to a thousand followers?! Technically it doesn’t count until 1001, because I do follow myself, but 1000 is just a prettier number.

 

 

Try To Keep Up

 

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My week, summed up very well.

Hey, wait up! Time, where are you? This isn’t fun, I don’t like hide-and-seek. Or tag. Or whatever this is in game form. There’s so much going on, I just have to keep up and keep my head from rolling onto the floor and out the door (and under a bush, until I turn into mush).

I’ll start from the beginning, shall I?

My cousins are visiting. It’s great to see them, it truly is, it’s just time consuming. Over the weekend we went to our second cousins where I played pool for the first time (!) and other fun games fit for our old age. I loved it, though my head hurt me a ton, and I didn’t have time to study for my tests. And…. I was gonna say something…. I swear I knew what I wanted to say…. Shoot. It’s gone. I’m trying to think back to what happened at the beginning of the week. It’s been erased from my memory, apparently.

Oh! Now I remember. We started the day (at school) with triple biology (always a blast), and then we found out about a nasty rumor.  For those of you that have been following diligently, you know that I have already started my driving process (see Colloquial Miss if you want to catch up on that lovely experience). Well, after getting your green slip/form (where they check your eyesight and take the picture for your license), you need to get it signed by your doctor before you can go take your theory test. The theory test is basically made up of thirty multiple choice questions that test your knowledge of the road signs, laws, right of way, and all of those de facto important things. Up until now, you would study for it independently then arrive at the government ministry and take your test. You’re allowed to get up to four questions wrong (meaning if four are wrong, you’ve passed).

Okay, there’s your background information. What we found out was that as of the first of January, they’re changing the whole system. Or in other words, we all need to take our theory tests by January first. A bunch of us, including myself (us being my friends and schoolmates), were already in the process of studying for the theory test. Using either books or online websites, you spend some time learning what each thing means and what the rules are, then you test yourself over and over. Time consuming (keep track of how many times I need to use that phrase to describe my week and I’ll give you a sticker), but not too hard. Out of four chapters, I had finished the first.

We all kind of stressed out, until my good friend J had the idea to call the higher ups and ask them if the rumor is true before we all vomit up anxiety on our textbooks. I apologize for crudeness. She did, and they told her that they don’t know anything, and when prompted for information on who does, they replied that they do. But they “won’t know anything until two days before the system changes”. Essentially, they can’t confirm the rumors but the system will be changing. That was bad thing number one.

All day long, even before the rumor surfaced, I had a head splitting headache. Is that a thing? Can I say that? Too late. It was horrible. Sometimes it’s manageable, but that day I just put my head down in class and tried to block the world out. It hurt so much, I don’t know how to describe it (oh wait, I kind of did. Check out Shining, Elegant, Weightless White). Usually, no matter how bad I feel, I can put up a pretty good front, to the point where people don’t know I’m sick until I tell them. But this time my teachers were asking if I was okay, and I wanted to cry. We also found out that our teachers had organized to take us to go see snow the following day as a fun stress-reliever (it doesn’t snow in our area), and I knew that I couldn’t go because busses make me really sick.

I got home, and studied through the pain because I had no other choice, going back and forth between theory and a year-and-a-half’s worth of biology material. Later in the day I went to physical therapy, where my physical therapist/study buddy and I went over some of my biology terms, and then we talked about his cute kids for the remainder of the time.  Then I got home, and guess what I did? I studied! Shocker!

Wow I just realized I can’t tell you about everything that has happened because it would take me until next week to write all of that, and I don’t have that kind of time. Okay, fast-forward:

1)   My sister collapsed and I had to take care of her until my parents could get home and figure out whether she needed to be taken to the emergency room or not (she was in the end, and then sent home). That’s what I did on the day my friends went to play in the snow.

2)   The biology test went all right for me though it was pretty hard, but it went badly for most of my friends, which was very upsetting.

3)   I had to go to the doctor to get my form signed, and that took a long time that should have been spent studying for theory. The whole process was time consuming.

4)   I was told I need to go on another upsetting diet (my friend D said I should call it a “regime”), this time dairy-free, gluten-free and no processed foods. If anyone feels it’s important, I can explain why at some point. Mainly, it sucks and I hate being sick. It’s so time consuming having to prepare food every time I want to eat something.

5)   My parents bought me a new phone, and I chipped in for about a third of the cost, but it doesn’t work. I went to six stores to try to set it up, then my dad went to five stores to try to set up (time consuming), and he finally found someone who knows how to do it for the added cost of over 100 dollars… Meanwhile, all of the back and forth has messed up my old phone (a cute little red Sony Ericson), so it’s not really working. Hopefully next week my phone will be set, and then I’ll be able to post from my phone! Ah! Though I probably won’t, let’s be realistic here. No mobile version is better than the real thing.

6)   That very bad headache? Still here. It won’t go away, I think it’s going to drive me insane if it doesn’t let up soon.

7)   Hey my lucky number! Ooh, which reminds me, I have to tell you about the theory test itself! Man this post is really long.

Anyway, today J and I got a ride with her dad and went to take our test. First off, the office was in a deserted building, on the second floor, on a landing outside the building, past a bunch of workshops where men with masks on and working heavy machinery turned to stare at us as we walked past. Briskly. Then we got to office, opened the door and a guard jumped up and told us to put our things on the desk while he ran his metal detector over us and stuffed our things into lockers. A pleasant welcome if I’ve ever seen one. Then we were told to sit, and after being sent back to put more of our things into our lockers (including my scarf, because it’s all the rage to hide answers in them nowadays), they finally called my name. J wished me luck, and I went up to the desk. They had me sign some forms, then told me to look at the camera. I suddenly got worried, because I did not want my license picture to be taken then, seeing as I already worked so hard to get a nice one of my green slip. I asked the lady what the picture was for, and said that I had already taken mine, and she went, “You’re pretty, what do you care?” *clears throat* I insisted, and then she told me it was for “identification purposes”. Fine. I smiled. By the way, I saw the picture later and it was not pretty.

Then she sent me into the room, where I was lead to cubicle number 7 (hence the memory trigger) and shown how to work the test. It’s on the computer; I was basically told how to use a mouse to press the “next” and “finish” buttons. J was seated next to me at cubicle 8. I took my time, answered everything very carefully, then went back and counted up how many I thought might be wrong. I got to three, so I decided to go for it and pressed the finish button. I came out, waited with J on the waiting chairs (that’s their official name) and then the same lady who thinks I’m pretty came up with both of our forms and went, “One of you passed, one of you failed”. Such a kind, tactful lady. Now, J and I had discussed what might happen if we went together, and we both came to the conclusion that one of was going to pass and the other one wasn’t, because it’s just been that kind of week. It was so bad that our friend D sent us both a text saying (after I updated them about the new regime), that she doesn’t know what to say but she thinks “we should commune and create a cry session for one of the worst weeks in 2013”.  J said, “Spot on”, and I declared that “I concur. It’s a date.” J said she would laugh if she fails, I warned her and her dad that I would cry.

So when she said that to J and I, we looked at each other and turned to our forms, and she started laughing before I had time to process the little word on my form that let me know that I passed. The second we made eye contact we started laughing hysterically because we were right, and then my favorite lady asked us to leave because we were being disruptive. We grabbed out things and headed for the door, where the guard stopped us and gave us his advice on when to come again and what website to use to study. He was actually sweet in the end, surprisingly. We quickly walked into the building from the landing and left.

I’m glad we’re such good friends that the situation wasn’t awkward. I was sad for her, she was happy for me, and mainly we were both exhausted, tired and angry about what a bad week it’s been. Luckily everyone is going there to take the test in the next few days, so she has plenty of opportunities to go again with someone, and then I’m sure she’ll pass because she did eleven practice tests the night before and passed all of them, so it was really just a fluke that she didn’t pass the real one. And I know she’s reading this, and laughing. Go get some food and stop doing more practice tests.

I was so tired last night that when I wrote my checklist for this morning, this is what came out:

–       Green slip

–       Wallot

–       Phone + id

–       Wallet

Yeah, it was that bad. I showed it to my dad this morning and he laughed at me. Understandably, I suppose. Ooh, and I scheduled my first driving lesson for next week!

Wow, I’m at two thousand words. Maybe it’s time to stop talking. Maybe I should edit some of this stuff out. But we all know I won’t.

Yours truly,

Ella

Song Quote:

We have paved these streets with moments of defeat. –These Streets, Bastille

 

P.s. Who got the meatball reference?

 

I’m Scared

Okay world, here’s your chance: what are you trying to tell me? Us? What’s the idea behind all of this? Third car accident in two months. Is there a reason? A message? Because if there is, I’m not getting it. I’m just getting that my family is getting hurt, and scared.

We’re okay. I mean, we’re not, but none of us are in the hospital, or seriously hurt. I just feel my sister’s pain so much. She and my other sister were driving to school six weeks ago and were rammed into from behind. Both were mildly hurt (the middle one has fibromyalgia too), but mainly the oldest suffered a lot from whiplash. This was her first time driving to school since (the middle sister wasn’t with her this time). And again, rear-ended on the same stretch of road as last time.

I just spent the last hour with her and my mom. We were trying to calm her down. She couldn’t stop crying. I hope her neck won’t have any permanent damage at this point. She and my mom just left for the doctor’s.

We’ve been having a hard time as a family. The middle sister and I both have fibro, my dad is always travelling for work (he was abroad for the previous two accidents, and now this one too), and now with all of these accidents happening… Oh, and my mom has shingles right now, to top it all off. My oldest sister was only just starting to regain some sense of normalcy, of being able to move about. I’ve been under a lot of pressure. It’s test season at school, I have all of these tests on everything I am supposed to have learnt in the past two years, back to back, and I’m starting to buckle under the pressure.

So what’s the point, huh? Why is this happening? Because clearly, I must be missing something. If the world wants to say something, it can just frickin’ say it already. Stop hurting my family. I can’t deal with this anymore, it’s too much, I just can’t. My friends are stressed out about tests. That’s it. Why am I the one that has to have all of the bad things? Sick self, sick sister, sick mother, car accidents… When is it going to end? Is our luck going to run out?

I’ve been walking around for the past few weeks being afraid to say good-bye to parents. I’m always scared it will be the last time I see them. The night my dad flew abroad a week and a half ago, I didn’t sleep. At all. I was too scared. There was a storm a few days ago, with thunder shaking up the house. My mom left to go to the doctor, leaving me in charge of the kitchen where we happened to be cooking up our own storm. I was left alone in charge of everything that was cooking at the time, frying this, measuring that, checking on that, stirring whatever. The thunder was so loud, I was in such a frenzy multitasking, I just suddenly got this feeling that something really, really bad was happening, right at that second. As my mom was leaving, my sister was trying to get the other car to start so she could drive herself to the physical therapist’s office, a five-minute drive. The car alarm went off, and it wouldn’t stop. It was the siren, the thunder, the sizzling, and I felt like I was drowning. Drowning in worry, I guess.

I didn’t burn any of the food. My sisters complained that the chicken was a little underdone. My family made it home okay. My dad is safe, far away at work. I told myself to calm down. I wrote in my diary that I’m really scared something is going to happen to one of my loved ones, and told myself that now I could let it be and try to move on. But then I was talking to my friends, and they all said that even with school pressure and things, they still felt like it was going to be a really great week. I was the only one that did not agree. I couldn’t help it, I was upset and worried, still. I told them I had a bad feeling about the week.

Then today I woke up, and my mom pulled me aside as I headed to get some breakfast and whispered, “she was in another car accident”. She whispered because she could barely bare to say the words. Now I’m alone at home, sitting in my room and writing. I actually woke up today, with this feeling that maybe I could make this week be a little more fun. I decided to have a dance party, but who can dance on an empty stomach?

So I never had my dance party. All my energy went to my sister, I have none left right now. I still have to go to school, and I have art later. I’m exhausted.

I don’t know why this is happening. I’m not sure I ever will. Just please, please, whoever makes these decisions, take pity on us already. We’re good people. My parents, my sisters, myself – we’re all very good, decent people. We don’t deserve this. I know no one does, but still, we really don’t. We have enough troubles already.

We don’t need more.

If you’re religious, any kind of religion, pray for us. If you’re not, just hope in your hearts for my family and me that we’ll be okay. I’ll take any help I can get at this point.

I’m scared,

Ella

Song quote:

Alice, there’s no reflection in the looking glass, you wear your party dress but there’s no party to attend… She’s looking for a way to escape and wondering whether she can find a way out without being seen… There’s no one left in paradise, just a pack of cards without the hearts. –Alice, Mononoke

Colloquial Miss

 

What a colloquial miss. We tried, we really did. This is just the I-don’t-know-how-many-I’ve-lost-count day that has gone down this way. My friends are all away, having themselves some great adventures, and I made my peace with the fact that I was going to be sticking out our weeklong break at home (sweet home). I had a highlight planned: completing the first step in the agonizingly long process of getting my driver’s license.

First thing’s first, I have to get my “green slip”- green as in go. Or Kermit. It’s mainly a technicality, an eyesight check, but you need it before you can start everything. I’ve been spending my days trying to catch up on homework, which I’m somehow still behind on, and I haven’t had any fun. At all. This was the one thing I was really looking forward to. The first step- it’s so momentous.

When you go, they make sure you don’t need glasses, take your picture (which is the one that will go on your license) and hand you your green slip. So, I purposely straightened my bangs today, picked out a shirt that makes my neck look great (just go with it) and brings out the blue in my eyes, and put on a tad of make up. I spent the whole entire day doing homework, primarily math (a whooping 65 geometry proofs and differential math equations for over vacation), making it through solely because I had something to look forward to. I was alone at home all day, with the excitement just growing and throbbing inside of me, pulsing with my heart.

My mom swooped by the house at a quarter to seven, and we drove to the mall, to the store that green slips people (awkward verb improvisation going on here). We arrive, after my long day of anticipation, and my mom and I talk about how exciting all of this is, and how it’s such a big step even though it’s a technicality. We walk into the store, tell them why we’re there and what do they say? “We don’t do that anymore”. You’re kidding me right?

We find out that as of a few days ago or something equally annoying in a ridiculous manner, a store on the main street is in charge of green slipping people. My puffed up plastic bag of anticipation started deflating. My mom and I leave the mall, get back in the car and start driving again. It was so anticlimactic. She agrees with me. We parked in the municipal parking lot off of the Main Street and start in our mad dash to find the infamous store. We’re running, running, running, (running), and we arrive out of breath as we see the overhead sign. We practically leap forward, and guess what? It’s closed. It closed at seven.

You’re frickin’ kidding me, right?! RIGHT?!

Wrong.

Closed.

That plastic bag still half full of spitty air? Punctured. Slashed. Empty. Hollow. Deflated. Depressing. Gone. Lost for eternity.

In an attempt to rebound into something positive, we brought my memory stick over to a photography store to get the pictures on it developed. All’s great, all’s well, until they let us know that because they’re closing soon, we’ll need to come back tomorrow to pick up the pictures. Yippee.

So we got frozen yogurt.

But do you know what this means? This means, that when we go back tomorrow my hair will be oily, I will no longer be wearing my perfect picture shirt, I’ll have dark circles under my eyes (because I can’t sleep when I’m upset) and I will have no spitty bag of anticipation. I will look tired and depressed in my picture. And the lighting in that store is awful. I will end up looking grotesque.

But here’s to being optimistic, eh?

As we were sitting outside the frozen yogurt shop, while I drowned my sorrows in banana-date flavored yogurt, I explained to my mom why the situation sucks so much. I was just getting to the part about how I look pretty today, and I won’t tomorrow, when someone walked right by our table. So a random woman got a mouthful about how “I looked pretty today!!!” My mom started laughing when the woman looked back at us, and tried to console me with the fact that at least it wasn’t a boy from my class. You know why it wasn’t one of them? Because they’re all abroad! I’ve got friends right now in Rome, Barcelona, Amsterdam, Switzerland, Thailand, New York… Everywhere but right here, suffering with me. Although I think J will be back from Barcelona soon. Maybe I can depress her too. Here’s to hoping.

You know what? I wasn’t planning on doing this tomorrow. This is messing up my schedule! I’m lying, I have no plans. It’s just annoying. It’s doubly sad: I need to go there again, and I don’t have any plans.

I’m just gonna go to bed now. I think it’s safe.

It’s me,

Ella

Song Quote:

The worst things in life come free to us. –The A Team, Ed Sheeran

P.s. You know what? I’m gonna wear this shirt again. Take that.

Shining, Elegant, Weightless White

In an uninspired moment, I tried to think of something to write. My brain seemed to be tired of words. I’m scared fibro is taking over. I wrote this:

Like a thin sheet of aluminum foil,

Wrapped tightly around my forehead.

It’s thin,

But heavy, heavy, heavy.

Pain has turned it into a dark, somber, rusted gray.

 

I imagine white acrylic paint and a paintbrush.

I painstakingly paint every millimeter,

Over and over,

Until the layers are threefold thick.

It’s a shining, elegant, weightless white. 

 

I wave my magic wand,

Wingardium Leviosa,

And it floats before me,

As I observe it in all its glory.

 

When time comes to me,

I open up a stark white pouch,

Place the luminous pain within,

Open up my drawer,

Slide the pouch inside,

And bid it good bye.

 

Until I see you again.

Yours truly,

Ella

Song Quote:

Try and stay out of your head, I have seen you invent the damnedest things there. –Take a Bow, Greg Laswell

(My new ‘song of the week’ is waiting for you on the right side of your screen)

When You Wake Me Up

RIP sleep

(I suggest putting on Ed’s song, that I have so kindly placed on the right side of your screen if you scroll down up a bit, before starting to read. I was listening to it while I wrote this.)

It’s really early in the morning. I’m in a kind of dreamy state, and all I keep thinking is: I want a man to love me. It’s funny, and I’m smiling, because that is so random. It doesn’t have much to do with my life at the moment. I’m sixteen, I’ve never been asked out, never been liked by a guy (as far as I’m aware), and that’s fine. I’m okay with being single. I have my entire life to know what it feels like to be in love.

This might all be because I listened to some very sweet love songs last night, right before I went to bed. Ed Sheeran has a few new songs out, and one of them is called “New York”. It is so sweet, and loving, and I want a man to call me darling like that, and tell me he will be there for me at the end of the night in the back of the taxicab. Come to think of it, I want a man who can sing Ed’s songs to me.

It’s five in the morning, which may be contributing to the fact that I seem to have no inhibitions right now. I don’t think I would have the guts to write the previous paragraph if I were fully awake and the sun were up. Good to know: never make important decisions at this hour.

I have to have certain tests done today, and you need to be awake for three hours before they’re done. And fasting. I don’t know which I hate more. Basically, my alarm was set for 4:45, and apparently knowing you’re going to have to wake up that hour makes it very hard to fall asleep. Funny story, I didn’t. Fall asleep, that is. I am so tired. As soon as the tests are over and I’ve gotten some food in me, I have to rush to school because I’ll be late as it is, then have a full day until 4:30. Odds are, I will be feeling so sick after just a couple hours that I will need to come home. Not sleeping doesn’t do wonders for Fibromyalgia. Surprise.

Okay, but I don’t want to talk about Fibro anymore. I wrote about my school trip that I mentioned in my previous post, but it was a disaster (the trip, not the post) and my family was having a really bad week, so in the end it didn’t come out so great because I was sobbing while I was writing it. It seems to be an occupational hazard. Basically, the trip was awful, my sisters were in a car accident, our Internet broke for a few days (starting the day of the trip and the accident- wonderful timing), and everyone just had a pretty bad week. I’m not so sure that not sleeping well, having a biology test, a literature test, having to study for a math test, and having biology classes on my day off  hold the promise of a much better week, I’m afraid.

But while we’re here, and my inhibitions are not, let me divulge more. I know I write well, and it’s my dream to write a novel (/finish one), but I don’t think I’m very good at writing fiction. Doesn’t that suck? I think it does. Right now I’m telling myself that is isn’t working because I don’t have a story to tell. You can’t force a plot, right? But I also have a hard time making characters believable, because I don’t believe them myself.  Maybe I need to meet more people.

The sun is starting to come up, and I don’t have much else to say. I want to have a really great life, with a really great man, who loves me. Oh, maybe that’s why! I just read a book called The Shoemaker’s Wife, and it’s a really beautiful love story (I cried hysterically at the end. It was ridiculous, but I couldn’t stop. My sister was trying to comfort me, and I said this and she’ll never let me forget it now: “I’ve known them their whole lives!”). Maybe that’s why I’m thinking about love. Put that together with Ed’s voice, and you get a romantic like myself dreaming whilst awake at 5 in the morning.

Ta da.

Love!

Ella

Song Quote:

It’s just reached the morning, You’re still in my arms, Now we stop driving, Down the boulevard, And I just kissed you, darling, I hope you weren’t alarmed, It’s just the start of everything you want. –New York, Ed Sheeran

P.s. Anybody get the title reference?

Let It All Rain Down

Ice cream, red, melting

It looks good doesn’t it? Well you’re about to be told you can’t eat it. Then it’s going to drip, and rain down on your brand new boots, and you’re going to slip in the puddle of your own misery. I’m in a good mood.

I want to quit. I’m sick of feeling this way, like I’m doomed, because of the pile of homework that is staring at me. I want to quit advanced math and advanced biology. They’re making me miserable. I’m just barely managing to go to school every day, and they’re making it impossible for me to ever feel okay.

I don’t think I can do school. I just don’t think I can do it. I know there are harder things in life, but I don’t see how it’s possible for me to survive this. Actually, let me rephrase that: I don’t see how I can survive this while not losing my mind and my health.

Guys, I’m so tired. It’s insane. My entire body feels like it needs to stop and wheeze every time I try to move because I just have no energy. Every day I wake up and something else is hurting me, and I just have to deal with it. I don’t have a choice. I don’t get to say, “well, it’s my fault, because I should be going to bed earlier”, then change my ways and see results. I get eight or nine hours of sleep every night, and it makes no difference. My pain and fatigue are the same.

The homework, the pressure, the stress: it’s all becoming a little much for me. I have a stiff neck right now on top of it all, and I literally can’t look down, so homework has become this hill I can’t climb over. Every teacher thinks they are teaching the only subject that matters, so they happily grant us the gift of hours of work, without thinking about the fact that maybe we have other stuff to do.

I don’t want to complain about it anymore. I don’t think it would help. I just want to officially put it out there: I am sick of this. My brain is tired, my body is tired, my neck is tense and my patience is gone.

 

_______________________________

 

My school is going on a trip next week. I don’t know how I’ll manage. It’s a three day trip, so for now the plan is for me to leave with the school in the morning (5:45 am), and in the afternoon let my mom know how I’m doing: if I’m fine, she’ll come the following afternoon to pick me up, and if I’m not, she’ll come that evening. The thing is though, that I can’t do any of the hikes, so I’m just going on the bus with them (the student body), dropping them off at the trail, and then going with a bunch of teachers and the secretary to do the food shopping. Then we go pick them up, and when we get back to camp, I’m on kitchen duty (every year, 11th grade is in charge of food). So I’m basically there to be the mom.

Last year I missed the trip entirely, which pretty much sucked. I don’t want that this year, so here I am. I just hope it’s worth it. I have a feeling that ten minutes into the bus ride I’m going to feel sick to my stomach, and half an hour later my head will explode. Then I’ll go do the shopping, and I’ll hurt my neck and knees. When I get on the bus and pick everyone else up, I’ll get a horrible migraine. When I’m working in the kitchen, I’ll hurt my hands. Not to mention I’ll be having cramps all day.

But I’m not pessimistic at all.

Dammit, I just want to have a good time and feel like a normal human being! Is that too much to ask for?!

Virtual hugs are welcome,

Ella

 

Song Quote:

Let it all rain down from the blood-stained clouds, come out, come out, to the sea my love, and just drown with me. –Shallows, Daughter

P.s. Yes, I know the song quote is dramatic and depressing. It matches my mood. It is what it is.