Actual Truth

Dear Abandoned Blog,

It’s not that I don’t love you anymore. Sometimes I just feel I’ve said all there is to say. The picture of my life has not yet evolved; I am still sick and I am still sick of it (more and more each day). Countless times I have moved beyond the moments of thinking I can’t take it anymore.

This summer marks four years since my headaches started and three years since diagnosis. What have I learned in all this time? Many things, that’s for sure, but none that make me feel like it’s been worth it.

It’s hard to be in pain all the time. As I once wrote, “My friends wonder how I do it, and I wonder why.” I often find myself in this numb state, where my anger is equal to my pain level and as the two compete I turn into a sort of zombie. I care so much that I just can’t care anymore, because caring doesn’t get me anywhere.

A problem shared is a problem cut in two, but I can’t share this pain because it is mine alone to bear. I’m by myself with it, feeling it day in and day out. I barely sleep anymore. I spend hours every night staring at the ceiling, blinking away tears, because the pain is so bad and there’s nothing I can do but survive it. All I want is for someone to hold me and make the pain go away.

Dear blog of mine, please don’t feel hurt. As you can see, I’ve been dealing with a lot. I’m very unhappy.

Since I last wrote to you, I graduated. I was in charge of graduation, and for three months I put my heart and soul into planning a beautiful evening. It took a lot out of me. I didn’t cry until after I got my diploma and walked offstage. It was a moment of relief, realizing it all went off without a hitch and I had no more responsibilities, but also a moment of great, deep sadness. I’m never going to get those years back.

I’ve been sick for so long, and the past four months have pretty much been the worst I’ve ever had physically. I told myself it was the pressure. It was the stress of graduation work, tests, social events, etc. But it’s been a month since I graduated, and I’m not doing very well. I’m in a pain spiral and it’s dreadful.

Please understand, dear blog, that it is not about you. It’s about me.

I love you,

Ella

Song Quote:

The tears come streaming down your face when you lose something you can’t replace. –Fix You, Coldplay

Yes, I’m Collecting Scraps

 

IMG_3001

The cover of the scrapbook. Poet, Bastille

Scrapbooking is not something new or something unheard of, but it is something that I think is underappreciated. It gives validation to my belief that there is meaning behind everything! That every candy wrapper can have sentimental value and every picture has a story that deserves to be written next to it. As you may have noticed, I like recording things and having written reminders of my thoughts and feelings (more on this topic in my upcoming posts – see Posting Schedule), and therefore my having started another scrapbook is not exactly surprising. I’m still going to tell you all about it though.

1. At work the other day I needed a nametag for an event, and someone showed me how to use the label maker. Yes, they have a label maker. Yes, they are the coolest people ever. I printed my name inside a candy wrapper frame a couple of times, and one of them is now on the back of my scrapbook. I’m not even going to try to cover up the fact that the label maker totally made my day and that maybe the single best thing in my room right now is my sticker label.

2. I stayed over at a friend’s house in a another city, and we bought frozen yogurt (because, um, what I do with my friends is eat frozen yogurt… I promise we do do other things too. Like laugh at “do do”). I saved the stamp card I got and made sure not to lose it, and it’s now in my scrapbook.

3. Every now and then, late in the evening, when I’m in a certain mood, I let myself float through YouTube for longer than recommended by, well, anyone. On one such night I lost myself in a flurry of commencement speeches, and I landed on one given by John Green. It is by far the best speech I have ever heard. I transcribed large sections of it, and it is now written in my scrapbook.

IMG_3005-001

Part I

Part II

Part II

IMG_3006

Part III

These three examples demonstrate what my scrapbook means to me. The things in there might not be the most beautiful or the most impressive, but to me they mean something. Every time I see my name on the back of it I will remember my (slightly) out of proportion excitement, and how sweet everyone at work was that day. Every time I see the frozen yogurt card I’ll remember hanging out with my friend and her boyfriend in a park playing Heads Up in the dark. Every time I read the highlights of the speech I will remember to let myself be inspired (though I have something against that word) and remember all of the people I have read it aloud to.

And of course, let us not forget, that my scrapbook is also full of collages and song quotes. Because, well… it’s me. Way back when, during what feels like forever ago, I wrote a whole post* about how I want to fall in love and it all had to do with listening to Ed Sheeran’s love songs. Without further ado, the love page of my scrapbook:

IMG_3004

Thinking Out Loud + Afire Love

*clears throat* Okay, back to business. I’m simply writing this to encourage you to maybe give scrapbooking a try and to share with you what I have been busy doing lately. Mission accomplished, right? Okay, fine, I’ll answer that myself: right!

 

Yours truly,

And babbling because that’s the mood I’m in right now,

Ella

 

Song Quote:

Where you invest your love, you invest your life. –Awake My Soul, Mumford & Sons

P.s. Tweet me with your examples of #RainbowArea!

*The post is called When You Wake Me Up

 

I didn’t even realize this is my 50th post! That’s insane! Please leave me a comment with the words (fifty, fiftieth, five, zero) or the number 50 in it. Let’s see what you can come up with :) get creative!

Rainbow Area

 

In life, there is an accepted term, “gray area”. It means things aren’t black and white; there’s no clear separation between good and bad. I’ve always accepted this term, and it never occurred to me how wrong it is until today.

It’s a rainbow area. It’s an area where a lot is happening, where things shift and change according to what we’re feeling and the circumstances, and what better way to represent shifting than color? I’ve always felt that I have some small version of synesthesia, because memories, dreams and feelings are represented in my heart by colors and shades of lighting.

I sometimes wish there was common ground in colors. If I tell someone that today I’m feeling orange, they’ll think I’ve gone a bit loco. To me, this makes sense: orange is a feeling, it’s the kind of mood I’m in. Yet when I try to translate this into normal people terms, it loses its meaning, and I simply say I’m feeling fine. But I’m feeling orange.

Humor me for a minute, and pretend you understand what feeling orange means.

Now do you have a better sense of me? Yes. Do you know what my day has been like? Yes. Do I need to say anything else in order for you to understand? Nope. Orange sums it all up.

Unfortunately and fortunately, colors are not used as everyday adjectives in the sense of feelings. Yes, I know what you’re thinking, you can “feel blue”, or “see green”, and these have a commonly accepted meanings, but they don’t count. Specific colors have been allotted certain connotations, and that doesn’t mean that’s the way I’m feeling. In my cozy world, green does not mean someone is jealous. Green can mean many, many different things, and jealousy isn’t actually among them.

So next time, instead of using the term “gray area”, please use “rainbow area”, and explain it to them if they don’t get it.

rainbow powder

Let’s make this a thing, people. #RainbowArea . It started here.

 

Yours truly,

Ella

Song Quote:

Loving him was red. -Red, Taylor Swift

 

Sheesh, time is flying! Don’t forget to send in your 2,500 competition entries! All of the info here: 

The deadline is Monday, July 14th!!!

In addition, I will hopefully be getting back to regular posts now that school is over for the year. I survived! I did it! For a few months now I just haven’t had much spare time, but as I said, you can start looking forward to weekly posts again :)