Not This Way

RIP sleep

This isn’t how it was supposed to go. I wasn’t supposed to feel like I was seconds away from collapsing all day. I’m not supposed to feel this upset after what otherwise would have been a great day.

 

Today was my first day of junior year, and like anyone would be, I was excited, nervous, and not at all eager for it to start. But at the same time, I was worried. I chose a beautiful outfit to wear today, got my hair cut a few days ago (so now when I wear it down it’s layered and naturally wavy), and got myself just a bit pumped about a new school year. But I was worried.

 

Ten minutes in, I felt sick to my stomach and needed to run outside. Too much noise, too many people, too many limbs around me. Outside it was extremely muggy, so after realizing I was probably going to get more oxygen inside, I went back in. Playing super hero music in my head and thinking “I’m going in” helped a little bit with that tough decision.

 

See, you all pretty much know me by now, or know the way my quirky head works. You know that I am generally an optimistic person, and that in almost every post, regardless of it’s theme, I have some witty or weird sentences that lift the spirits a bit. This comes naturally, and it wouldn’t be me writing if whatever piece didn’t have those. Right now though, I don’t want them to be here, because it’s makes me sound happy or strong or brave or whatever, and I’m not! Well. I am. But I’m not. You know?

 

No.

 

I had a really hard time. I’m not going to get into everything that happened today, but I’ll share a few main events that show that the staff at my school are incredible, and that I feel really sick:

 

-My teacher had the “tech staff” turn down the volume on the microphone after it worsened my migraine.

 

-The school guidance counselor brought me a cup of water and offered to take me home when she saw how I looked (dead and sweaty).

 

-The principal picked up my backpack, carried it for me, and let me stay in his office (under the air conditioner) until I felt a little better.

 

-The school superintendent is setting up a cupboard in my main classroom so I don’t have to walk down two flights of stairs to get to the lockers.

 

So as you can see, my school has been absolutely amazing to me so far, and it’s only been a day. I’m so incredibly thankful for them, especially the guidance counselor who has been on my side since the first day three years ago, when I transferred into this school. She’s known me since before all of the medical shifts and scares.

 

At the same time, this year is extremely intense in terms of school work and schedules, and my energy is so limited that whatever leeway I’m given will only make a dent. I have a long scary year ahead of me, and I want to just go ahead and tackle it, but I don’t know if I can. I’m so sick and so tired after one frickin’ day. How am I supposed to last more than that?

 

It doesn’t help that I haven’t seen my dad in forever. Part of it as because my vacation was longer than the rest of my family’s, so I missed a week, then he went away on business. It has been two and a half weeks since I saw him, and he comes back this Friday. Usually our relationship is great, even when he’s away, but this time it’s been complicated. He’s away so often, and he misses so much of my life. I know it’s not fair to be angry at him, because it’s not like he’s having that great of a time and he’s just abandoning us. He’s working all day long, and I know that he’s probably lonely. He just… he’s away, you know? My life keeps going, and two weeks in teenager land is a major chunk of time.

 

He misses doctor’s appointments, school meetings, tests, and dinner I cooked for everyone last night. Ten minutes on the phone everyday is just not enough. He also has a knee-jerk reaction to any complaints, which is to get angry/frustrated and try to make it clear to us that the world is a mean place and we should just deal. The thing is, I’m not like some other family members: I rarely complain. I rant, but in a funny, sarcastic way. If I’m complaining, it means it’s serious and I need support. Him telling me off is not what I need. It’s not like I’m trying to have a bad day on purpose.

 

For instance, when my mom and I went to another doctor last week (a new one), he (the doctor) was a total jerk and upset me a lot. I talked with my dad on the phone right after, and I was basically sobbing into the phone. He very quickly just got frustrated and told me I should just deal and not over-react. When I talked to him the next day he told me he talked to my mom, and “it turns out” I “wasn’t exaggerating, the doctor really was a jerk”. No kidding. I told him I don’t normally complain or make a big deal out of little stuff, so if I tell him something, he should just take it as it is. It’s the truth. It doesn’t help that he always has to cut the conversation short because a meeting is starting.

 

I try to be understanding, to tell myself that he’s working really hard, that he didn’t choose to have to travel so much (except he did, basically), and that he would much rather be home with us all the time. But at the end of the day, when I’m a kid and he’s my dad, he just isn’t home. I hate it, and I’m crying, because I miss him and I don’t want to have to write this down. If I don’t though, I’ll just feel worse.

 

Starting a new school year is never supposed to be all that amazing, but it definitely wasn’t meant to be like this. I just want to feel better already. Screw all that telling myself it could be worse, and that I should love and enjoy life. Life right now sucks. I want to be better. Healthy.

 

I can’t sit here anymore, my back hurts.

On that absolutely beautiful and uplifting note,

Yours truly,

Ella

 

Song Quote:

All the dishes and the words would pile up inside, she loved the world but it didn’t love her back. -Expecting Too Much, Orla Gartland

 

Apparently, I am simple.

Baby at the beach

What I felt like doing the second I got out of his office…

I went back to the homeopath, the one that “I’m Not That Simple”  is about. Joyful, right? Well.

First thing he says to me is “Ella. You look better.” I got this feeling inside that I was about to have the most wonderful experience of my entire life. Really. I’m being serious.

No I’m not. First, he did the same thing that annoyed me last time (which I could say about a hundred things, so I’ll be specific). He read out every symptom I have, and asked me if I still have each one.

Me: We can just skip this, I feel exactly the same.

Dr: Exactly the same?

Me: Yes.

Dr: But you look better.

Me: I tanned.

Dr: You have more color in your face.

Me: Because I tanned.

Dr: So you still have the head aches?

Me: Yes.

Dr: And they still start in the morning?

Off we go again, repeating it all. I’m really not going to rant about this too much, I did that last time. The one major thing that bothered me (again) was that he was still trying to peg my Fibromyalgia on one specific event.

Dr: Ella, what do you think happened that gave you Fibromyalgia?

Me: I don’t know.

Dr: (pulls a snotty face) you can give a better answer than that, Ella. (Annoying usage of my name.)

Me: I don’t know. It happened. Life happens.

Dr: What do you mean by that?

Me: What do you mean what do I mean? Stuff happens, in life. Fibromyalgia happened.

Dr: So there wasn’t anything specific?

Me: No. We went over this last time.

Dr: Well Ella, I can’t remember everything.

Clearly. I was starting to get very upset at this point, because I know they have to ask, and often Fibro is caused by accidents or traumatic incidents, but we had already been over it. We had already told him it wasn’t like that, and that it wasn’t a psychological trigger. It literally just happened. I started getting this pain, then a year later, that pain, a few months later, another, and within another few months I was a wreck, and we were scrambling for appointments at the children’s hospital to get me diagnosed. It happened. It’s happening.

Do you want to hear the best part?

Dr: Oh, now Ella’s angry. She’s got that fire in her eyes. You definitely seem better than last time.

Me: Yeah, last time I was kind of having a bad day (slightly sarcastic, you can imagine).

Dr: A very bad day.

Me: Yeah. Thanks.

That’s it, I’m done now. It sucked. He put me on a new “remedy” (didn’t explain this one either), and just to make it more fun, I have to take it twice a day rather the one, like last time. I eat like a bird, people. I need food, every 20 minutes. With this remedy, I have to not eat anything for half an hour, take it, then wait another half hour before eating. The problem is, I forget to take it until I get hungry, and then I think, shit. The medicine. So I take it, but that extra half hour is torture because I’m already really hungry.

But, it seems I will just have to deal.

I get major points for not losing my temper.

Your truly,

Ella

Song Quote:

A white blank page and a swelling rage… So tell me now, where was my fault? -White Blank Page, Mumford and Sons

P.s. What do you guys think about me adding a page (next to Home and About) about Fibromyalgia? The technicalities, I mean, what it is (to the best of my ability), what my personal experience is, sources for more info? Let me know.

 

Update (07.24.13): I’m off an vacation in a few days, so I don’t know when I’ll be able to post again or when I can sit down and work on the info page (I probably won’t have access to wifi for a while). Sit tight, I will return with a lot to tell, and the info page will make its way here. Thank you all again!