Velvet.

We stole

An hour.

To say hello,

Again.

 

We stole

A piece of time

And made it our own.

Amid the trains

And the busses

And the shops

And the people,

We stole

Glances.

We smiled,

Eyes crinkling

Hearts beating

Cheeks seizing

Absorbing

How it feels

To be together. (Again).

 

We traipsed and traipsed

Over the same

Ground and ground,

Lifting all our baggage and carrying it around,

Piling it up in corners as we sat

So we could get

Close.

Closer.

 

We stole

Back

Fragments of

Thoughts and

Feelings

Swept

Around constantly

By distance

And (my) doubt.

We took

Our (sliver of) time

And put everything back together. (Again.)

 

We stole

A cuddle on a bench, a kiss in an elevator, a picture in a reflection. Embraces by the trains and the busses and the shops and the people.  

 

I trembled, like I always do

When I finally get to see him.

I rested my head

On his chest, beneath his chin.

A vision of velvet emotions.

I leaned my body into his,

Lined my heart up with his,

Let myself be wrapped up in his,

Love.

I let my erratic pulse sing with the silence,

And my incessant thoughts rhyme with the quiet,

And my tireless unsettled movement tango with the grounded hush,

Because all I really wanted

Was time.

 

We walked by all the people and we walked by all the shops, and he got on his train and I got on my bus.

 

We stole

An hour,

And said goodbye

Again.

 

~~~

Ella

Song Quote:

I wanna feel what love is, I know you can show me. I’m gonna take a little time, a little time to look around me, I’ve got nowhere left to hide, It looks like love has finally found me. -I Wanna Know What Love Is, Foreigner

 

Waves.

img_0303

Fireflies, fairy dust, flowing sparks and floating stars, flickering in the air, falling light moats around us when we’re together.

We curled closer.

Peachy lights casting enchanted glow and cold night air I don’t feel when I’m with him.

Heart all aflutter when I realize how he feels about me.

Comfortable quiet of the hushed world beyond and the harmony of our emotions trembling in sound waves between us.

The way he looks at me… “And how’s that?” Like you love me. “I do.”

If you thought my heart was beating quickly before…

The way he makes me feel when he says my name, the way my heart melts at the sound of his softest voice, the way he makes the air crackle with electricity when he’s near me (the boy brings the sun to its knees every night*).

The way he makes me miss him.

The way I almost want to resent him for making me miss him so much (but he says I do the same to him and it’s not fair).

The way it dawns on me every time that as tired as I am of waiting for him, he’s beyond worth it.

The way I discover over and over that he is everything I’ve been looking for (he is my wildest dreams).

The way I’m simultaneously euphoric and petrified when I realize my heart isn’t just my own anymore – it’s also his.

We curled further into each other.

The way I always have and always will forget to take things one day at a time.

The way I simply wouldn’t change a thing…

~~~

Ella

Song Quote:

You’re just too good to be true, can’t take my eyes off of you. -Franki Valli

* “I know I should crumble for better reasons
but have you seen that boy he brings
the sun to its knees every night.” – Milk and Honey, Rupi Kaur

21.

Part 1

Finally. Sweetheart, darling, sunshine, honey. I, miss, you, dearly. Far, apart, distance, expanse, away, shake, mama, shake, your, head, come, home. (21)

Tiny, dancer, I, love, the, peace, in, the, backseat, wish, I, was, there, direct, you, into, my, arms… I, love, you. (21)

Tom. (1 because you should know)

Part 2

Break, down. Missing, him, him, missing, me, so, much, happening, alone, confusing, questions, doubts, taken, aback, is, this, right? Missing, him. (21)

Always, waiting. Always, waiting, for, a, call, always, waiting, for, a, text. Him. Always, waiting, for, him, always, waiting, for, him. (21)

Confusing. (1 because it’s true)

Part 3

Trembling, in, your, arms, overcome, emotion, real, real, real, “You’re, not, a, burden, honey, you’re, a, blessing”, embracing, me, at, last. (21)

Warm, cozy, comforting, glowing, whisper, soft, tender, new, close, closer, illuminated, attentive, quiet, melting, fuzzy, admiring, dazzling, serenity, hushed, golden. (21)

Happy. (1 for good luck)

Part 4

Good, morning, Sunshine, snuggle, me, don’t, leave, and, then, and, then, and, then, his, life, was, almost, almost, and, I, can’t. (21)

I, can’t, believe, I, can’t, breathe, how, close, I, was, to, losing, him, please, fear, don’t, panic, leave, so, me, afraid. (21)

He’s, I’m, we’ll, be, okay, okay, okay, surreal, real, not, everyone, was, lucky, hold, me, we, are, gratitude, okay, unsettled, alive. (21)

Alive. (1 to remind myself we are)

21 days.

And. (1 to write this)

~~~

Ella

Song Quote:

I believe in miracles. -You Sexy Thing, Hot Chocolate

Bloom.

All you have to do is write one true sentence. Write the truest sentence that you know.

-Ernest Hemingway

I never thought I would have the life I have now. I thought it was impossible, that I would be denied and deprived of it until the day I was no longer sick. I thought Bloom had been stolen from me. I thought like that up until so recently… and then everything changed.

Except that’s just it. Nothing changed. I changed. Sick and tired of waiting to be better to do what I wanted to do and live the way I wanted to live, I’d finally had enough. I remember telling my friends about this crazy idea I had. I told them where I wanted to move, that I had no idea what I would do, where I would live, or how I would get by, but that I was going to figure it out.

And I did. I turned it from something I thought would never happen, from a crazy idea, to a plan, then to a reality, to the life I have now that I can’t begin to tell you how much I love. I find myself thinking, always during the most humdrum moments, “This is Bloom”. My life was so lacking, and now I have everything I was missing. Minus health, of course.

It’s winter now and my pain is ever-present. The cold has turned my body into fragile marble. I feel like I’m drowning beneath the pain, suffocating because breathing takes too much out of me, freezing because my head can’t think over the sound of the struggle. And still —

I’ve never been as happy as I’ve been these last three months since moving. I’ve never felt this happy for this long. I’ve never been as happy to be buying fresh produce, walking to a train stop or doing my laundry. I’ve never been as happy to be in pain, because unlike in the past, I know the pain isn’t winning.

I’m winning. This is Bloom.

I’ll never forget I thought this life was something I would never have. I have it now, and not a day goes by that I’m not grateful for it. I’m grateful for it and I’m grateful for myself, for trusting my instincts and not letting my lack of hope or my lack of health stop me from daring to live.

To live in spite of it all.

Someone recently asked me how I manage to deal with all the pain, and my answer was simple: “I just really love life.”

That is the truest sentence I know.

~~~

Ella

Song Quote:

I live for this feeling, this everglow. -Everglow, Coldplay

Mint.

A ray of sunlight will always find its way through my metal slab shutters in the morning. The front door swings open of its own accord if it isn’t locked. There’s a little girl in my building named Ella – she’s always being called outside to play. My stove only responds if you touch it very softly. My windows don’t reopen if you close them. My bed’s too big for one person – I need another person to make it feel right.

This is home. It’s been three weeks, but it may as well have been a lifetime. I’m on my own now.

There’s a guy, who will forever be known as “The One Who Was Nice To Me On My First Day”. I hope he knows that he’s infamous in my book now. He started a conversation as I sat awkward and out of place, and invited me to a movie with a bunch of people. I didn’t know their names until I got there. Until the movie was over.

There’s another guy, who will forever be known as “The One Who I Flirted With And Who Flirted With Me.” He was sweet, and thoughtful, and warmed my hands when they were ice cold. We were surrounded by people the entire night – his people and apparently now mine too. He didn’t seem to care. He cared about my story and what I’ve been through, without knowing who I am. We laughed, and joked, and he made my face all warm and my heart expand. I felt something, maybe for the first time ever. I could see it.

He walked me home, even though it was out of his way. He told me about himself and I won’t share much, lest someone put two and two together. But he made himself vulnerable – more vulnerable than I would have thought him capable of after only a few hours. My apartment came around too soon. It was late, but the entrance to my building was swarming with people. We hugged. We pulled apart. Or rather, I thought we were pulling apart but he was pulling me in for more than a hug. I didn’t realize. He got my cheek.

I was flustered. I should have expected it – I was hoping for it the whole night – but it took me by surprise. I felt uncomfortable surrounded by all those people, the children, everyone watching us. I quietly said, sweetly I hope, “Not in front of the kids.” He smiled, I think. I’m not sure. We hugged again, and held hands as I parted for the building. I couldn’t sleep, running the whole thing through my mind and wondering how I could have made things end differently. I couldn’t sleep, thinking of the next time I would see him.

I saw him today. I don’t think I imagined the whole thing, but today… it didn’t seem like we had the same experience that night at all. He hugged everyone around me, but barely said hello to me. I wouldn’t care, except that when I saw him walk through the door I felt like my insides were struggling to escape. I’ve never felt that before. I watched as he made his rounds, and waited for him to reach me, suspended by the suspense of not knowing how he would greet me. But I don’t think I imagined the whole thing, so now I’m left with… Did he misinterpret my response that night? Did he feel rejected (like I do now)? He has no way of knowing what I’ve been thinking ever since then. How I’ve been thinking of him.

My new job is strange. I’m not sure how to find my place in an environment that’s so dynamic, but I’m taking it as it comes. Ask me one day and the place is amazing – the people, the cause, the projects – it’s phenomenal! Ask me the next and the place is confusing and I am out of my element. 

We’re five roommates, but three are subletting to other girls, so in the span of less than 20 days I’ve had 7 roommates.

There was a while when fibro was a non-issue. It’s an issue again, but I refuse to accept that.

I joined a gym. They’re requiring me to bring a doctor’s note that it isn’t dangerous for me or other people to join classes.

One night I sat on my porch in the dark and watched a show on my laptop. One character proposed to the other, and I burst out crying. It was just too much.

There is not a single person around me who has known me for longer than three weeks.

The light switch closest to my front door controls the light furthest from it. My fridge has a “pour water” option, but the spout isn’t where the marking is. There are four mirrors on the trip from the entrance to my room. The microwave isn’t broken – only the “Start” button is. The pictures I’ve strung up along my wall fly off when I turn on my fan. I’ve stopped using my fan.

This is home, and I love it more than anyone could possibly imagine.

This is my life now, and it’s all I’ve ever wanted. 

~~~

Ella

Song Quote:

Something inside me has changed, I was so much younger yesterday. -Starving, Hailee Steinfeld

Brave.

 

It’s hard for me to write why I’m scared and what’s making me nervous. Clearly it’s all of it, but there’s something keeping me from using the words. In three days I’m moving out to a place I’ve never lived before to live with people I don’t know, and start a new job at a center where I know no one and will have to prove myself from scratch. It’s a lot, and my pain is through the roof. I’m barely sleeping and for the first time in awhile it feels like fibromyalgia is a dragon breathing fire once again.

I’ve been making promises to myself recently. Maybe I’ll use those words.

I promise to remember that it’s okay if:

  • I cry a lot.
  • I don’t conquer everything at once.
  • I feel scared.
  • I call home a lot.
  • I ask for help with silly things.
  • I cut myself some slack and not try as hard as I always do.
  • I feel lost and small. No need to feel even worse for feeling those things.
  • I don’t have fun right away. Things take time.

I promise to take good care of myself. To do so I need to make sure to:

  • Stretch before bed every night. Seriously.
  • Follow the annoying but wise “no-screens-after-nine-p.m.” rule.
  • Eat well, which means cook.
  • Keep up my exercise. Find a class or something… Yes! Become that young adult in a new place who joins groups to meet people.
  • Call my people.
  • Write a lot. It keeps me sane, it keeps me calm, and it’s beautiful to look back on. 
  • Listen to music all the time. Have dance parties. Rock out to my jams when I’m feeling down. It always works, like true magic.
  • Be nostalgic the appropriate amount. It’s par for the course. Draw strength from the experiences and memories.  

I promise not to forget that:

  • I deserve my best shot at life.
  • This whole adventure is a good thing. It’s what I wanted. Remember why you are where you are.
  • I am creative, capable, and a total badass, so I can turn anything that’s thrown my way into a piece of cake (that’s non-processed, dairy-free and chocolate-free. Maybe I need another metaphor). 
  • It might not be right away, but I will have fun! I will have so much fun. I can’t lose sight of that. I purposely created this year to have what I’ve been missing this past year – new people, independence and some fun.
  • There are so many people rooting for me. They have faith in me and they know I’ll do well and succeed and live a good life. If they know it, I should know it too.

Also, Ella? Once everything settles down your pain will alleviate. You know that, so don’t freak out. Survive it like you survive everything else. Don’t lose sight of everything. Ready set go.

Time to be brave.

~~~

Ella
Song Quote:

I did my best to assure her but assurance isn’t easy to give. -Words, Passenger

 

As promised, a new collage! This will go on the wall of my new bedroom.

collage

All of the pictures are from magazines, and I like to cut flowers out of different ads and glue them on for a pop of color.

collagecorner

“She believed she could, so she did”

Change.

 

Change is gathering up ahead.

I’m trying all of my adjectives.

A little while ago I was talking to my friend, Jewel,about how, when I was a little girl, I had this vision of my future self. The vision was very clear:

I’ll be independent, living in my own apartment, working a really cool job and helping people. I’ll be the person people turn to for support, understanding, laughter and ideas. I’ll have a worth of knowledge and wisdom to share. I’ll be sociable, confident, proud and happy with where I am in life. I’ll be glamorous because I’m free and comfortable with who I am.

Ringing any bells?

It suddenly hit me that somehow, without consulting the picture I had painted before I even turned twelve years old, I managed to create and execute a plan that would allow me to live exactly the way I hoped I would.

Magic? Truth.

~~~

Among the things that have already changed this past year is that I’m no longer The Sick Kid. Sure, I’m still sick (she says so nonchalantly), but I think that not being surrounded by healthy kids all day made the title fade a little. It’s not how I think of myself anymore. It carries much less weight in the equation these days.

And yet… I am sick. How will I manage?

The Change, it’s all-encompassing. I’ll be starting with a completely blank page. I’ll be living and working with people I don’t know. Absolutely everything around me will change and be different than it is right now. Three months from now I’ll have a whole new world.

I find myself in need of a reminder that that’s a good thing. That’s why I’m writing about Change – because it’s desired. It’s healthy. It’s what I want and what I’ve been waiting for all of this time.

Take a deep breath and look around. Appreciate where you are right now before it all changes. Don’t let a single good thing pass you by. Take snapshots of moments with the people you love and admire. Spread your arms and soak in the feeling of the present. Change is coming.

Get your adjectives ready.

~~~

Ella

Song Quote:

I walked off an old me… And now, breathe deep, I’m inhaling. –Alaska, Maggie Rogers (in love with this song!)

{By the way, please note that this is filed in a new category called “Changed.” Future posts will also be in “Changed.” Welcoming in a new era, three years on…}